Suggested reading > Reading list
For professionals | For the general public
For professionals
Hospice
Books
Armstrong-Dailey A. & Zarbock, S. F. (2001). Hospice care for children. 2nd ed. New York: Oxford University Press.
Connor S. R. (1998). Hospice: Practice, pitfalls, and promise. Washington DC: Taylor & Francis.
Harris, M., Della, M. & Boyd, P. (1999). Handbook of hospice policies and procedures. Gaithersburg, MD: Aspen Publishers.
Sheehan, D., Forman, W. (2002). Hospice and palliative care: Concepts and practice.
2nd ed. Sudbury, MA:: Jones and Bartlett.
Marrelli, T. (1999). Hospice and palliative care handbook: Quality, compliance, and reimbursement. St. Louis: Mosby-Year Book.
Articles
Anonymous. (2001). Hospice care and the medicare hospice benefit. Journal of Medical Practice Management. 16(5). 237-240.
Boling, A. & Lynn, J. (1998). Hospice: Current practice, future possibilities. Hospice Journal. 14(3-4). 75-84.
Brenner, P. (1999). Hospice care and palliative care: A perspective from experience. Hospice Journal. 13(3-4). 155-166.
Dahlin, C. (1999). Access to care. Hospice Journal. 14(3-4). 75-84.
Enck, R. (2001). Performance improvement in hospice care. Journal of Hospice & Palliative Care. 18(4). 222-223.
Hoyer, T. (2002). Hospice and future of end of life care: Approaches and funding ideas. Journal of Palliative Medicine. 5(2). 259-262.
Kovacs, P. (1998). Hospice research: challenges, opportunities and rewards. American Journal of Hospice and Palliative Care. 15(5). 295-300.
National Hospice and Palliative Care Organization. (2001). The medicare hospice benefit. Issue Brief. Center for Medicare Education. 2(9). 1-6.
Palliative Care
Books
Bosanquet, N. & Salisbury, C. (1999). Providing a palliative care service: Towards an evidence base. New York: Oxford University Press.
Doyle, D., Hanks, G. & MacDonald, N. (1999). Oxford textbook of palliative medicine. 2nd ed. Oxford: Oxford University Press.
Enck, R. (2002). The medical care of terminally ill patients. 2nd ed. Baltimore: Johns Hopkins Press.
Rousseau, P. (2001). Palliative care. Philadelphia: W. B. Saunders.
Smith, S. (2000). Hospice concepts: A guide to palliative care in terminal illness. Champaign, Ill: Research Press.
Articles
Belasco, J., Danz., P., Drill, A., Schmid, W., & Burkey, E. (2000). Supportive care: Palliative care in children, adolescents, and young adults-model of care, interventions and cost of care: A retrospective review. Journal of Palliative Care. 16(4). 39-46.
Billings, J. & Pantilat, S. (2001). Survey of palliative care programs in united states teaching hospitals. Journal of Palliative Medicine. 4(3). 309-314.
Davis, M., Dickerson, E., Pappagallo, M., Varga, J., Shuster, J., & Benedetti, C. (2001).
Palliative care: Long-term solutions for long-term care. Part 1. Home Care Provider.
6(3). 90-99.
Pendley, D. & White, R. (1999). Applying hospice principles in the palliative care debate. American Journal of Hospice & Palliative Care. 16(1). 412-415.
Peralta, Jr., A. (2001). Symptom management in hospice and palliative care. Texas Medicine. 97(8). 42-51.
Thomas, M. & Quinn, C. (2002). Palliative care: Rapid redesign to support systemwide quality improvement. Journal for Healthcare Quality: Promoting Excellence in Healthcare. 24(1). 25-29.
Saunders, C. (2000). The evolution of palliative care. Patient Education & Counseling.
41(1). 7-13.
Walsh, D. & Gordon, S. (2001). The terminally ill: Dying for palliative medicine. American Journal of Hospice & Palliative Care. 18(3).
End-of-Life Care
Books
Devries, B. (1999). End of life Issues: Interdisciplinary and multidimensional perspectives. New York: Springer.
Kinzbrunner, B., Weinreb, N., & Policzer, J. (2002). Twenty common problems in end-of-life care. New York: McGraw-Hill.
Lynn, J., Schuster, J., & Kabcenell, A. (2000). Improving care for the end-of-life: A sourcebook for health care manager and clinicians. Oxford: Oxford University Press.
Quill, T. (2001). Caring for patients at the end of life: Facing an uncertain future together. Oxford: Oxford University Press.
Snyder, L. & Quill, T. (2001). PhysicianÌs guide to end-of-life care. Philadelphia: American College of Physicians.
Articles
Alley, F. (2002). Improving end-of-life care. Healthcare Executive. 17(3). 78-79.
Baker, M. (2002). Economic, political and ethnic influences on end-of-life decision-making: A decade in review. Journal of Health & Social Policy. 14(3). 27-39.
Block, S. (2001). Perspectives on care at the close of life: Psychological considerations, growth and transcendence at the end of life: art of the possible. JAMA. 285(22). 2898- 2905.
Doyle-Brown, M. (2000). The transitional phase: The closing journey for patients and family caregivers. American Journal of Hospice & Palliative Care. 17(5). 354-357.
Introcaso, D. & Lynn, J. (2002). Systems of care: Future reform. Journal of Palliative Medicine. 5(2). 255-257.
Lee, K. (2002). Future end-of-life care: Partnership and advocacy. Journal of Palliative Medicine. 5(2). 329-334.
Krol, P. (2001). The power of presence. Pharos of Alpha Omega Alpha Honor Medical Society. 64(4). 12-15.
Parker, R. (2002). Caring for patients at the end of life: Reflections after twelve years of practice. Annals of Internal Medicine. 136(1). 72-75.
Patrick, D., Engelberg, R., & Curtis, J. (2001). Evaluating the quality of dying and death. Journal of Pain & Symptom Management. 22(3). 717-726.
Robertson, R. (2002). End-of-life care. American Family Physician. 65(5). 787-791.
Steinhauser, K., Christakis, N., Clipp, E., McNeilly, M., Grambow, S., Parker, J., & Tulsky, J. (2001). Perparing for the end of life: preferences of patients, families, physicians, and other care providers. Journal of Pain & Symptom Management. 22(3). 727-737.
Teno, J., Field, M. & Byock, I. (2001). The road taken and to be traveled in improving end-of-life care. Journal of Pain & Symptom Management. 22(3). 713-716.
Wrede-Seaman, L. (2000). The expertise of hospice professionals leads to quality end-of-life care. American Journal of Hospice & Palliative Care. 17(3). 161-162.
Zuckerman, C. & Wollner, D. (1999). End of life care and decisions making: how far we have come, how far we have to go. Hospice Journal. 14(3-4). 85-107.
For the general public
Hospice
Books
Fairview Hospice. (1999). The family handbook of hospice care. Minneapolis: Fairview Press.
Lattanzi-Licht, M., Mahoney, J. & Miller, G. (1998). The hospice choice: In pursuit of a peaceful death. New York: Simon & Schuster.
Lee, E. (2002). In your own time: A guide for patients and their carers facing a last illness at home. Oxford: Oxford University Press.
Panzer, R. (2000). The hospice patients alliance family guide to hospice care: What no hospice will tell you. Rockford, Michigan.
Articles
Anonymous. (2002). Hospice care underused. PeopleÌs medical society newsletter. 21(2). 5.
Burnham, R. (1999). Hospice care: Making an informed choice. USA Today. 127(2646). 58-59.
Kinzbrunner, B. (2001). The medicare hospice benefit. Quarterly Newsletter of the American Academy of Hospice and Palliative Medicine. 1(3). 1-8.
Palliative Care
Books
Barnard, D. (2000). Crossing over: Narratives of palliative care. Oxford: Oxford University Press.
Heffner, J. & Bycock, I. (2002). Palliative and end-of-life pearls. Philadelphia: Hanley & Belfus.
Lawton, J. (2000). The dying process: PatientsÌ experiences of palliative care. London: Routledge.
Articles
Anonymous. (2002). Palliative care. Mayo Clinic Health Letter. 20(2). 4-5.
Doukas, D. & Doukas, M. (2001). Turning from ÏcureÓ to ÏcareÓ. Hastings Center Report. 32(5). 10-11.
Hickey, M. (2000). Giving more patients Ïa good deathÓ. Business Week. 3708. 166- 167.
End-Of-Life Care
Books
Bartlow, B. (2000). Medical care of the soul: A practical and healing guide to end-of-life issues for families, patients and health care providers. Boulder, Colorado: Johnson Books.
Lynn, J. & Harold, J. (1999). Handbook for mortals: Guidance for people facing serious illness. New York: Oxford University Press.
Muth, A. (2000). Death and dying sourcebook: Basic consumer health information for the layperson about end-of-life care and related ethical and legal issues. Detroit: Omnigraphics.
Solomon, M. (2000). Innovations in end-of-life care: Practical strategies & international perspectives. Larchmont, NY: M. A. Liebert.
Station, J., Shuy, R., & Byock, I. (2001). A few months to live: Different paths to lifeÌs end. Washington, D.C.: Georgetown University Press.
Webb, M. (1999). The good death: The new american search to reshape the end of life. New York: Bantam Books.
Articles
Fischman, J. (2000). Reaching death with comfort and a clear mind. US News and World Report. 129(17). 60-62.
Girsh, F. (2000). Death with dignity: Choices and challenges. USA Today. 128(2658). 62-64.
Lague, L. & Gross, A. (2000). Start the conversation. Modern Maturity. 43(5). 51-59.
Steinhauser, K. (2001). A "good death" requires more than medical care. USA Today. 129(2669). 1-2.
